Navigating Survival: A Phenomenological Exploration of Families Caring for Schizophrenia Patients During Pandemic
DOI:
https://doi.org/10.19166/nc.v13i1.9725Λέξεις-κλειδιά:
Care during pandemic, family adaptation, mental health, phenomenology, schizophrenia careΠερίληψη
The role of the family in caring for individuals with schizophrenia is crucial, particularly in providing emotional support, monitoring treatment, and assisting with daily activities. This involvement inevitably leads to care burden, which can result in inadequate care during the pandemic. This study aimed to explore how families adapted to caring for a family member with schizophrenia during the pandemic. This qualitative study employed a phenomenological approach and was conducted in East Java, Indonesia. The participants included seven family members who provided care for individuals with schizophrenia within their households; none of the participants were related to each other. Data were collected through semi-structured, in-depth interviews and analyzed using interpretative phenomenological analysis (IPA). Four main themes were found by the thematic analysis, including: 1) Feeling an excessive burden of caring; 2) Hoping for the recovery of schizophrenia patient; 3) A sense of responsibility to continue caring for schizophrenia patient (core theme); 4) Trying to survive in caring for schizophrenia patient during the pandemic. The findings suggest that nurses can help alleviate family caregiving burdens through targeted interventions such as Community Mental Health Nursing and Psychosocial Mental Health Support, crucial strategies for maintaining family well-being and preventing patient relapse.
Αναφορές
Ali, A., & Kumar, S. (2023). Impact of COVID-19 Pandemic on Mental Health of Healthcare Workers–A Perception of Indian Hospital Administrators. International Journal of Mental Health Promotion, 25(7), 833–845. https://doi.org/10.32604/ijmhp.2023.028799
Awad, A. G., & Voruganti, L. N. P. (2008). The Burden of Schizophrenia on Caregivers. PharmacoEconomics, 26(2), 149–162. https://doi.org/10.2165/00019053-200826020-00005
Badan Litbangkes Kemenkes RI. (2018). Laporan Nasional Riskesdas 2018. Jakarta: Kementerian Kesehatan Republik Indonesia.
Bjørlykhaug, K. I., Karlsson, B., Hesook, S. K., & Kleppe, L. C. (2022). Social support and recovery from mental health problems: a scoping review. Nordic Social Work Research, 12(5), 666–697. https://doi.org/10.1080/2156857X.2020.1868553
Chien, W.-T., Norman, I., & Thompson, D. R. (2006). Perceived Benefits and Difficulties Experienced in a Mutual Support Group for Family Carers of People With Schizophrenia. Qualitative Health Research, 16(7), 962–981. https://doi.org/10.1177/1049732306290140
Cipta, D. A., Andoko, D., Theja, A., Utama, A. V. E., Hendrik, H., William, D. G., … Lumbuun, N. (2024). Culturally sensitive patient-centered healthcare: a focus on health behavior modification in low and middle-income nations—insights from Indonesia. Frontiers in Medicine, 11. https://doi.org/10.3389/fmed.2024.1353037
Crespo-Facorro, B., Such, P., Nylander, A.-G., Madera, J., Resemann, H. K., Worthington, E., … Newton, R. (2021). The burden of disease in early schizophrenia – a systematic literature review. Current Medical Research and Opinion, 37(1), 109–121. https://doi.org/10.1080/03007995.2020.1841618
Darban, F., Mehdipour- Rabori, R., Farokhzadian, J., Nouhi, E., & Sabzevari, S. (2021). Family achievements in struggling with schizophrenia: life experiences in a qualitative content analysis study in Iran. BMC Psychiatry, 21(1), 7. https://doi.org/10.1186/s12888-020-03025-w
Fitryasari, R., Yusuf, A., Nursalam, Tristiana, R. D., & Nihayati, H. E. (2018). Family members’ perspective of family Resilience’s risk factors in taking care of schizophrenia patients. International Journal of Nursing Sciences, 5(3), 255–261. https://doi.org/10.1016/j.ijnss.2018.06.002
Gayatri, M., & Irawaty, D. K. (2022). Family Resilience during COVID-19 Pandemic: A Literature Review. The Family Journal, 30(2), 132–138. https://doi.org/10.1177/10664807211023875
Geschke, K., Steinmetz, A., Fellgiebel, A., & Wuttke-Linnemann, A. (2024). The Influence of Resilience on Caregiver Burden, Depression, and Stress in the Course of the COVID-19 Lockdowns. Sage Open, 14(2). https://doi.org/10.1177/21582440241249273
Gutiérrez-Maldonado, J., & Caqueo-Urízar, A. (2007). Effectiveness of a psycho-educational intervention for reducing burden in latin american families of patients with schizophrenia. Quality of Life Research, 16, 739–747. https://doi.org/10.1007/s11136-007-9173-9
Ilmy, S. K., Noorhamdani, N., & Windarwati, H. D. (2020). Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review. Indonesian Nursing Journal of Education and Clinic (Injec), 5(2), 185. https://doi.org/10.24990/injec.v5i2.315
Ilmy, S. K., Windarwati, H. D., Noorhamdani, N., & Wijaya, Y. A. (2022). Exploring Family Understanding of Schizophrenia: A Qualitative Study Among Rural Families in East Java, Indonesia. INDONESIAN NURSING JOURNAL OF EDUCATION AND CLINIC (INJEC), 7(1), 92. https://doi.org/10.24990/injec.v7i1.474
Kaakinen, J. R., Coehlo, D. P., Steele, R., & Robinson, M. (2018). Family health care nursing: theory, practice, and research (6th ed.). Philadelphia: F.A. Davis Company.
Keliat, B. A., Marliana, T., Windarwati, H. D., Mubin, F., Sodikin, M. A., Kristaningsih, T., … Kembaren, L. (2020). Dukungan Kesehatan Jiwa dan Psikososial (Mental Health and Psychosocial Support) COVID-19: Keperawatan Jiwa (2nd ed.). Depok: Fakultas Ilmu Keperawatan Universitas Indonesia.
Kirkbride, J. B., Anglin, D. M., Colman, I., Dykxhoorn, J., Jones, P. B., Patalay, P., … Griffiths, S. L. (2024). The social determinants of mental health and disorder: evidence, prevention and recommendations. World Psychiatry, 23(1), 58–90. https://doi.org/10.1002/wps.21160
Setiawati, N. M., Sawitri, A. A. S., & Lesmana, C. B. J. (2021). Family support and quality of life of schizophrenia patients. International Journal of Public Health Science (IJPHS), 10(3), 696. https://doi.org/10.11591/ijphs.v10i3.20915
Snoubar, Y., & Zengin, O. (2022). Social Support Effectiveness of the Mental Health of Immigrants Living in Belgium. The British Journal of Social Work, 52(5), 2707–2725. https://doi.org/10.1093/bjsw/bcac031
Stuart, G. W., Keliat, B. A., & Pasaribu, J. (2016). Prinsip dan Praktek Keperawatan Kesehatan Jiwa (Buku 1) (1st Indone). Jakarta: Elsevier.
Teahan, Á., Lafferty, A., McAuliffe, E., Phelan, A., O’Sullivan, L., O’Shea, D., & Fealy, G. (2018). Resilience in family caregiving for people with dementia: A systematic review. International Journal of Geriatric Psychiatry, 33(12), 1582–1595. https://doi.org/10.1002/gps.4972
World Health Organization. (2022, January 10). Schizophrenia. Retrieved December 3, 2024, from https://www.who.int/news-room/fact-sheets/detail/schizophrenia
Yates, J., & Mantler, T. (2023). The Resilience of Caregivers and Children in the Context of COVID-19: A Systematic Review. Journal of Child & Adolescent Trauma, 16(4), 819–838. https://doi.org/10.1007/s40653-022-00514-w
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Πνευματική ιδιοκτησία (c) 2025 Shofi Khaqul Ilmy, Heni Dwi Windarwati, Niken Asih Laras Ati, Ari Dwi Sulaksono
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